Characteristics of the parents and children
| Characteristics | Frequency (%) |
| Parents’ prior research experience | |
| Yes | 32 (21.2) |
| No | 119 (78.8) |
| Period between the current study and enrolment into the parent trials, median (range) | 16 (1–36) |
| Gender of the parent | |
| Female | 127 (84.1) |
| Male | 24 (15.9) |
| Age of the parent, median (range) | 40 (18–69) |
| Education level of the parent | |
| Tertiary level | 1 (0.7) |
| Secondary level | 38 (25.2) |
| Primary level | 86 (56.9) |
| None | 26 (17.2) |
| Monthly income of the main earner (Ugandan shilling) | |
| Less than 200 000 | 79 (52.3) |
| 200 000–499 999 | 34 (22.5) |
| 500 000 and above | 38 (25.2) |
| Relationship to child | |
| Biological parent | 89 (58.9) |
| Grandparents | 32 (21.2) |
| Others | 30 (19.9) |
| Child had prior experience with research | |
| Yes | 28 (18.5) |
| No | 123 (81.5) |
| Gender of the child | |
| Male | 75 (49.7) |
| Female | 76 (50.3) |
| Age of child in years, median (range) | 9.02 (1–16) |
| Overall health status score on a scale of 1–10, median (IQR) | 3 (1–4) |